Adult congenital heart disease
Lifelong follow-up
Dr. Léa Dumas
Cardiologist

In simple terms
More and more adults live with congenital heart disease: organized specialized follow-up.
A growing population
Thanks to advances in pediatric cardiology, 90% of children with congenital heart disease reach adulthood. They require specialized follow-up throughout their lives.
Main pathologies
Atrial/ventricular septal defect, tetralogy of Fallot, transposition of the great arteries, coarctation of the aorta, single ventricle. Each requires specific follow-up.
Specific complications
- Arrhythmias: very frequent
- Heart failure
- Pulmonary hypertension
- Endocarditis: prevention according to risk
- Reoperations sometimes necessary
Specific issues
Contraception, pregnancy (multidisciplinary preconception consultation), adapted physical activity, work, anesthesia: all require specialized advice.
Organized follow-up
Centers of expertise dedicated to adult congenital heart disease. Smooth transition from pediatric to adult cardiology.
The words explained
Medical terms used above, in everyday language.
- Blood pressure
- The force of blood pushing against your artery walls. Too high, over years, damages the heart and vessels.
- Prevention
- Steps taken before a problem starts, to make it less likely.
When should you see a doctor?
- Your symptoms last more than a few weeks or keep coming back.
- They get worse quickly, or stop you doing everyday things.
- You notice sudden pain, breathing trouble, fainting or bleeding — seek urgent care.
- You already take medication and want to change anything about it.
This article explains general health information. It does not replace advice from your own doctor.
Frequently asked questions
- What is Adult congenital heart disease?
- More and more adults live with congenital heart disease: organized specialized follow-up.
- What are the main symptoms or signs of Adult congenital heart disease?
- Common signs vary from person to person. The article above lists the symptoms to watch for, how they progress, and when they need medical attention.
- When should you see a doctor for Adult congenital heart disease?
- See a doctor if symptoms last more than a few weeks, get worse quickly, stop you doing everyday things, or if you notice sudden pain, breathing trouble, fainting or bleeding.
Related health topics

Mental Health
ADHD in adults: often a late diagnosis
Methylphenidate, CBT, organization: understanding and supporting adult ADHD.

Pulmonology
Pulmonary hypertension: high pressure in the lung arteries
Why pressure rises between heart and lungs, the tests that confirm it, and today's treatments.

Conditions
Myocarditis: inflammation of the heart muscle
Signs that follow a simple infection, the tests that confirm it, and why rest from sport is essential.